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Please take a look at my new Blog Lifes Mosaics
which has now taken the place of my Latest News page.
Everyone is welcome to express their
much appreciated and valuable comments
http://lifes-mosaics.blogspot.com
Healingspur is specifically designed for carers, family and friends, a website for everyone. A respite space where
all carers caring for loved ones at home can relax and communicate with those in similar situations and circumstances, devoted not only to the loving benefit
of the person they are caring for, be it that they may have been diagnosed with dementia, alzheimers, or any other
disability, but also to a community of friends who can share their experiences, questions, thoughts, and yes even laughter,
everyone is here to give their support and encourage each other in their daily lives, a space where at any time you
can take a brief holiday on this informal site which will ultimately be added to as we are new and expanding, so
please remember to visit us.
There are many reasons to be relaxed, satisfied, and even excited to find new and interesting ideas and things that
happen and sometimes go unnoticed every day, even if you may feel you are alone and housebound in your caring duties,
finding it difficult to find time for yourself, you will find companionship, news, interesting ideas, and a variety of
subjects to spur you on, a platform to air your views, and a comfort area to relax in, and a fun place to laugh in.
Anyone who would like to add sensible and helpful ideas to encourage others are welcome, please do not hesitate to contact me.
If the carer is not cared about, who then will take care of those unable to care for themselves.
May everyone understand that this website is to give choices, Links are provided for that reason, the choice is yours, not only for those in the UK but for everyone in the world whatever nationality, culture, or denomination to share, there are many people in this world to care about, in fact about everything living on this planet, and everything happening, do not get despondent there are those who care, searching for answers to many questions and situations. However until all peoples of this earth open their hearts and minds to what caring truly means may our good and loving God by whatever name protect and guide us all to realisation and awareness that we are all one. Information is available not only here but to all on the internet, it is said we are over informed and under enlightened, may you find what is helpful here, some time to relax and share good things and what is important to you, happy or sad, for you can be sure it is also important to many others worldwide.
We are all capable of so much more than we think we are and people who care are gifted with a strength that at times, when things are difficult they may not always recognise, we are here always as a reminder of the fact, and to care for the carers
Please do not forget to view Pals message board for new interest and announcements as it is still always there for information.
June 2009 I have a new blog Life's Mosaic's please visit here to view
http://lifes-mosaics.blogspot.com
Please click on this link to visit Pals Message Board
Do visit my other educational fun site for all ages jiggle

Reported in the recent national news earlier diagnosis is being encouraged for dementia patients, we already have 700,000 people with dementia in Britain now 244,000 in care homes many of which are substandard. Today I read because of the fast rise of people suffering from dementia the NHS is at risk of collapsing within the next 20 years, the amount spent on research is ridiculously low and the cost of treatment could double to nearly 50billion a year within a generation, not only this but the number of carers taking care of loved ones at home will obviously also increase, I wonder how much we carers can take without adequate help because it certainly isn’t adequate now, not only must we unite but everyone in spite of the numerous difficulties in many areas that people are facing today everyone must unite and realise how this is inevitably going to affect the majority of families in a very short space of time, 20 years or sooner is not long. Something more must be done now not later or it will be too late, we all age and we ALL must care now.
More frequently now we are hearing about the plight of the 700,000 people suffering from Alzheimer’s
and dementia in the UK, and the shocking situation carers and vulnerable families who are caring for
those with the illness at home are going through. When you have worked and saved all your life and find
yourself needing to go into a care home that can cost £40,000 per year it is disgraceful to be forced
to face the fact that because the threshold for means testing is so low you are actually being penalised
for having a brain disease, it is not a part of the natural aging process it is a brain disease.
The quality of care is inadequate as is any help in the community, and it is now vital for the government to
address this situation before the growing number of dementia and Alzheimer’s sufferers reach an expected
million in just over a decade.
Who is going to care for these people?
It is being left up to partners and family members who are living a nightmare to cope,
and are forced to give up their jobs and their lives. More than 400,000 Alzheimer’s and dementia
patients live in the community and thousands are cared for by their partners and relatives.
This is not just the story of one carer but of thousands caring for all sufferers both young
and old with disabilities. There are many horrendous personal experiences that carers are facing to
read about on forums and links on the internet, and as reported in the national news.
Why is this being cruelly ignored and constantly being put on a back burner.
When carers require help the majority of times they are passed on to authorities who are under funded,
under staffed, and some are not even adequately qualified. Seven million carers are waiting for an answer.
There is no such thing as retirement for a carer, there are many husbands and wives
well past retirement age who when one partner is diagnosed with dementia the carers then find themselves
with total responsibility, in many cases they then have to take courses in order be able to nurse their
loved ones who have disabilities and mental problems, and for this valuable experience and devoted time
they get a carers allowance of £50.55 which does not in any way cover the cost of many needs,
and those who receive a state pension do not get it at all, also if working you must not earn over £95 per week
and must not get one of a list of other benefits, if the patient suffered from cancer all the help would be free.
www.carersuk.org/Information/Financialhelp/CarersAllowance
There are situations where carers get no payment at all if they are slightly
above the means test. The carers work is difficult enough particularly when they are elderly
and sometimes ill themselves caused by over work, stress, and long sleepless nights, it is difficult for
them to find the time due to caring, transport problems, finding sitters, and their own health problems to
find the energy to even get to carers meetings and make their needs known, and carers feel this is taken advantage of.
The government strategy planned over a period of the next five to ten years mentions no workable plan as yet to
help carers. There are carers meetings all over the country to discuss what they think would help them,
and this is a difficulty considering each case is individual with individual needs. When you have worked and saved
all your life to find yourself a carer in this situation it is heart breaking, and is wrong to be penalised
financially or in any other way.
It is time now for the government to stop taking advantage of carers who feel emotionally blackmailed
into putting up with an unfair situation while they are saving the government approximately eighty seven billion pounds per
year; it is time now that carer’s rights were addressed, not in eighteen months, two years, or five or ten years time.
If the government want to save money in the long run pay carers a reasonable and fair amount for what they do,
give them the help they desperately need and the concern that their health deserves.
Helping the person they are caring for helps the carer to a certain extent, but not the carer to improve their own
personal life due to lack of money and lack of help. If more respite was available many carers still have to pay for
temporary care for their loved one if they have to go into a care home, which can be up to £500 per week,
as well as paying for themselves if they want to take a break away, If they were paid sensibly and had more
help there would be less need for patients to go into a care home when their illness progresses,
as long as the greed of exorbitant amounts of money being paid by people who have to sell their homes and
use their life savings to survive, the care situation will continue and get worse. And the health service
continue to be over loaded as more carers become ill themselves Whether you are a carer or not particularly
in the UK (but also worldwide) and have a social conscience and compassion, do something and make the carers
plight known in any way you can.
What the government has done so far is definitely not enough,
Gordon Brown admits that not enough has been done, carers don’t want empty words and platitudes they want action.
More Information added today 3 September 2008
Recently it was reported in the national news that the government is committed to improving financial help for carers, this could cost £130 million for support allowance annually and an extra £2 billion a year for caring costs, considering that carers save the UK 87 billion a year. Carers do not want to hear anyone say that money is tight and that it is difficult to find the financial help that carers need, 3 or 4 billion is too little in comparison to 87 billion. Older carers well past retirement age are still unpaid workers, too many with only their state pension of £50.55 per week.
Although it is recognised that each individual caring situation is different, this should still be taken into consideration what ever the cost. There is no mention of those carers who are taking care of those with mental disabilities which affect the sufferers in many different ways, and also the carers who are taking care of them as it involves great stress on the carer because of the different behaviours of the sufferers, some who have very erratic behaviour due to their condition, dementia or other. This should be assessed individually and considered immediately as needs be now at what ever cost.
Six million carers in the UK need help now.

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http://www.tvt-messed-up-mesh.org.uk
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http://www.topix.com/forum/com/jnj/TTE0RAIRMP5EFC052
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